> Get Reliable Information about Chronic Lymphedema
Goals for Knowledge Mobilization:
Informing Others
We hope to provide reliable information about chronic lymphedema to our audience in a manageable and accessible manner. We firmly believe that the value of knowledge is allowing people from all backgrounds to access it and empower them to use this information in strategic ways to support themselves or others
Promoting Discussion
Through our platform, we want to promote conversations between our Team and individuals who will be using our website. We will be staying connected with our community through our contact us page and email.
Gaining a better understanding
Ultimately, we want to help ourselves and others better understand perspectives, experiences and needs in a way that can bring people together, unified by a common cause. We aim to maintain a positive and supportive platform.
Why is raising awareness and getting educated about Chronic Lymphedema so important?
Chronic lymphedema greatly impacts the lives of a considerable amount of people globally. The prevalence of the condition and the various ways it manifests itself highlights the importance of further initiatives focused on helping and advocating for those with chronic lymphedema.
Our website is an opportunity to shift from the traditional healthcare model and allow for higher engagement and empowerment for those affected, and their loved ones. An increase in patient involvement has led to an increase in inquiry about their condition as well as improved collaboration with healthcare professionals (1). Our website hopes to answer general concerns as well as open clients up to a world of specific health resources.
Our main goal is to provide clients and colleagues with access to a reputable yet simplified resource for patients, professionals and others in the community to find a common ground. By doing so, we hope to raise awareness on a complex topic, such as chronic lymphedema.
References
(1) Bussey, L. G., & Sillence, E. (2019). The role of internet resources in health decision-making: a qualitative study. DIGITAL HEALTH. https://doi.org/10.1177/2055207619888073
This article examines patient involvement along with the many ways that internet resources play a role in health decision-making. The results indicate three major roles the internet plays: a supportive role, a stimulating role and an interactional role.